What a game! We had a fun time at home. I cooked a good dinner, had cupcakes and ice cream and Bailee was our seat attendant!! She gave us all assigned seats to sit in too:) To funny.
I hope all of you have a great week. We have a busy one:)
Hugs~
Sunday, February 7, 2010
Saturday, February 6, 2010
Brown Bear, Brown Bear, What do you see..........
I LOVED him reading this book. Bailee also read for me but for some reason I could not get her's to upload. Still working on it though:)
We are having a good weekend so far. Been lazy today and just hung out at the house with the family. We are babysitting Gizmo (Mom's dog) and he is great entertainment for the kids.
I will probably end up taking Brayden back to the ENT about his runny nose. It is really bad today. I am going to call them next week. We have a super busy week next week and am looking forward to the kids being home the following week for winter break!!!!! Please remember the Bowden family. Angel Aubrey earned her angel wings Thursday morning.
“He protects you day and night. He keeps you from all evil and preserves your life. He keeps his eye upon you as you come and go and always guards you.”
(Psalm 121:6-8)
I LOVED him reading this book. Bailee also read for me but for some reason I could not get her's to upload. Still working on it though:)
We are having a good weekend so far. Been lazy today and just hung out at the house with the family. We are babysitting Gizmo (Mom's dog) and he is great entertainment for the kids.
I will probably end up taking Brayden back to the ENT about his runny nose. It is really bad today. I am going to call them next week. We have a super busy week next week and am looking forward to the kids being home the following week for winter break!!!!! Please remember the Bowden family. Angel Aubrey earned her angel wings Thursday morning.
“He protects you day and night. He keeps you from all evil and preserves your life. He keeps his eye upon you as you come and go and always guards you.”
(Psalm 121:6-8)
Tuesday, February 2, 2010
GREAT Week!!
It is only Tuesday a and this by far has been the BEST week we have had in a long time. Brayden has been so good at home and school. Therapy was good yesterday. Today we had the behavior counselor out again to do some more evaluating. I hope that our good week continues:)
I can not believe that we are already in February! This is a big month for us because it is Bailee's birthday month!! She is sooo excited about her party. Love is really in the air:)
Brayden continues to battle a cold. He was doing do good then when he came off his antibiotic his nose started running again. He is now back on his 1200 mg. of the COQ10. We were off for a while due to it not being covered by insurance and the compound was not working (according to labs. Thanks to my step-dad for getting the right brand and working to get it covered!!! That is a lifesaver because it is VERY expensive otherwise. So far so good. It usually takes several weeks for it to work properly. Still waiting on the results from labs drawn a couple weeks ago when we went to his mito doctor. Brayden continues to be delayed in the fine motor skill area. This is something that is going to take a lot if work and patience!! He can finally peddle a bike, jump forward and many more gross motor skills.
We are so blessed to have such great family and friends that we can call on when we need to. Thank you to all of you who pray for my family daily. We can see prayers working everyday. Please keep the Bowden family in your prayers, little Aubrey has been sleeping since Saturday and they need all the prayers they can get. Here is her CB site http://www.caringbridge.org/visit/aubreybowden.
Have a great rest of the week:)
Hugs~
I can not believe that we are already in February! This is a big month for us because it is Bailee's birthday month!! She is sooo excited about her party. Love is really in the air:)
Brayden continues to battle a cold. He was doing do good then when he came off his antibiotic his nose started running again. He is now back on his 1200 mg. of the COQ10. We were off for a while due to it not being covered by insurance and the compound was not working (according to labs. Thanks to my step-dad for getting the right brand and working to get it covered!!! That is a lifesaver because it is VERY expensive otherwise. So far so good. It usually takes several weeks for it to work properly. Still waiting on the results from labs drawn a couple weeks ago when we went to his mito doctor. Brayden continues to be delayed in the fine motor skill area. This is something that is going to take a lot if work and patience!! He can finally peddle a bike, jump forward and many more gross motor skills.
We are so blessed to have such great family and friends that we can call on when we need to. Thank you to all of you who pray for my family daily. We can see prayers working everyday. Please keep the Bowden family in your prayers, little Aubrey has been sleeping since Saturday and they need all the prayers they can get. Here is her CB site http://www.caringbridge.org/visit/aubreybowden.
Have a great rest of the week:)
Hugs~
Tuesday, January 26, 2010
Yay!!! I finally have a blog! This where I will update regularly. I look forward to blogging:) I am such a scrapbooker but believe it or not I hate to journal in my books?? So, this will be my journal time!
We have had a lot to do this week already. We went back to the allergist Monday to review Brayden's blood test that she had requested. To make a long story short, the mass cells in Brayden's skin are constantly going haywire. This in turn makes him VERY sensitivity to everything! There was no one thing that he was "allergic" to. Just sensitivity to all. She did suggest that we go see a dermetologist. Also, to give him zyrtex everyday.
Today we had a behavioral councelor from Marcus come out and talk with us. She will be meeting with me once a week to try to implement things that can help us with some of the behavior challenges we have with him. If you don't know because of the way the mito has effects his brain we get some behaviors that are quite a challenge. I have full faith that she will move mountains in our life:)
Both the kids will be playing ball this year! Bailee is so excited to play again. Brayden is also excited to be playing again. He will be playing on a 5yr old team! Well thats all for now:) hope you like my blog!!!!!
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